Posts filed under Share Your Story

Cobalt poisoning from metal put in my gums for new tooth

cobalt_allergy.png
My story starts with the title, I had to have some teeth pulled and then the dentist put metal in my gums for the false teeth.....

I’m not sure how long it took, but i started to lose my memory and just laid in bed all the time... Now, I don’t know who, but every now & again, i would wake up and go to the computer to look up some symptoms and how I was acting... For I didn’t even know who my family was.... OR WHO I EVEN WAS. Luckily the GOOD LORD put me on the computer & helped me find this article about cobalt poisoning and I had every symptom of it...(Now there WASHN’T MANY ARTICLES to find)......

I went back to the dentist (who thought I was CRAZY) and told him I wanted the implant taken out right now...... he REFUSED to do it because there were SO MANY bad things that could happen taking it out...... Now, GOD helped me there again, because I DIDN’T know WHAT TO DO... and all of a sudden ... I just looked him in the face and said “.... WHAT AM I SUPPOSE TO DO.... CALL A LAWYER????? Well, that really took him for a surprise and of course, he didn’t want that to happen, so he agreed to take it out.....

I was VERY LUCKY to have not had any problems from the removal, other than I do have ringing in the ears terrible, my memory has come back to where I can at least live my life..... I still get confused, buy am VERY LUCK TO HAVE A WONDERFUL HUSBAND AND FAMILY TO HELP AND STAND BY ME :))

I HOPE that this MIGHT HELP SOMEONE ELSE who may have cobalt poisoning and don’t realize what it is........ IT’S SOOOO SAD that the DOCTORS DON’T EVEN KNOW ABOUT THIS........... Now, it’s NOT the doctors fault, for there isn’t very much articles on this... I was LUCKY and now, I PRAY for the poor people who the doctors say have dementia, because they both have the SAME SYMPTOMS.

I still am not back to who I was before.
— Anonymous

WOW. How scary this must have been for you! I’m so proud of you for being brave enough to risk taking out the implant… that was a huge decision to make and it really ended up paying off. Having a doctor telling you “no” and knowing there are possible complications is a big risk to take, but when it comes to the state of your mind… I agree that it’s worth it. I am SO glad it paid off for you. I’m sure this was a learning experience for the doctor too!

It makes sense that having an allergen living in your body can manifest in a lot of ways, including making its way to your brain. This makes me think of all the women who have had similarly terrible complications from the Essure implant. In this case, it’s nickel and not cobalt (from what I’ve heard), but it has ruined a LOT of lives.

Thank you SO much for sharing your story. This is extremely important information to share and I hope it helps somebody else!

Hidden Nickel

nickel_allergy_acupuncture_titanium_dioxide_allergic.png
I had patch testing done years ago and was able to have relatively itch free years. Knowing the chemicals and metals that affect me and being free of them makes it so much easier to figure out when something new sneaks in. Sometimes it takes awhile but the most usual suspect is nickel.

Two surprising sources of nickel are acupuncture needles and supplements/pills. I thought the needles were supposed to be 100% stainless steel but I was having a reaction and my practicioner contacted the manufacturer and there is a slight amount of nickel in them. So slight that they are not obliged to list it!

I have also realised after many months of dealing with hands that were erupting,peeling and repeat for months that the supplements I was taking were causing the outbreaks. They and many pills, toothpastes and other products have titanium dioxide added for whitening. This titanium dioxide also has some nickel added during production which is not listed on any packaging. I have now stopped taking the supplements and are researching others that are not coated.

Hope this info helps others who are suffering and looking for hidden triggers!
— Anonymous

I’ve always wondered about acupuncture needles! The practice of acupuncture has interested me for quite some time and I almost booked an appointment. I ended up being swayed in another direction (you can read about there here), but after reading your story I’m glad I didn’t try the needles! I think it’s terrible that they aren’t at least required to list a trace amount of nickel. Some of us are crazy sensitive!

I gave a big frowny face when I read about the supplements… nickel seems to be hidden in SO many things. It’s overwhelming! I’m glad you were smart enough to figure out that tid bit about titanium dioxide, though. Good job! Now I’m gonna check my vitamins. Thank you for sharing this info with us :-)

XOXO, Jennifer

Difficulty Of Being Allergic to PG

propylene_glycol_allergy.png
About four years ago, when I was in seventh grade, I had dry skin on my face that my dad gave me some Eucerin lotion for. The next day I woke up with my face so swollen and irritated that I couldn’t open my eyes fully. I looked like a tomato with teeny slits for eyes. For about a week my face stayed like this, rashy, irritated, puffy and peeling (it’s gross). I finally got diagnosed by a dermatologist as being allergic to PG and Propylene Oxide after missing almost a week and a half of school. I got some desonide cream from the local Walgreens pharmacy and life was good. Until my most recent reaction. My family went to a concert for my moms birthday, and the band’s techs were running an absurd amount of fog from the machines, and it only took about 10 minutes for my skin to start itching and burning. We left after being there for 30 minutes total (the band feels really bad, my dad is friends with their light tech) and then had an awful 2 1/2 hour car ride home. I went to our new doctor for a prescription (my old tube of desonide cream was empty) and I went on my merry(ish) way to get the prescription from the pharmacy. I put some of the cream on the second we were out of the store, because at this point I had been in pain for 3 days straight. The cream tingled, which I thought was normal, and the swelling went down. I woke up this morning with my eyes puffed up again, so I put my cream on, and hoped for the best so I could make it to work. Within minutes of putting on the cream, my entire face started burning, itching and swelling. We checked the ingredients of my prescription (which was a topical corticosteroid I had used for 4 years but a different brand) and it had PG. I did research to find out more about my allergy (this blog has helped me so much, by the way, thanks) and found that the best place to find the kind of corticosteroids that I need is Canada. I live in the middle of the US. Im fine with reading labels, im used to it. What I’m not used to is my face feeling like it’s going to implode. If you have any tips, tricks, etc. it would be greatly appreciated. Thanks again for your help :)
— Anonymous

Hello, fellow PG allergy warrior!

I am SO GLAD you brought up the theater smoke thing because I recently ended up bowing out of a family outing because I was told theater fog would be present. I won't get into the details because this is about YOU, but the whole situation was really aggravating on SO MANY LEVELS. It's amazing how many different types of things contain propylene glycol... from food to body products to medication and theater smoke... it's hard to avoid! People joke sometimes and say things like, "Man, I bet you're even allergic to soap!".... thinking they're being funny and extreme, but their face always drops when I tell them they're accurate. I'm very grateful for this online community because most people just do not get it. How could they?

For steroid ointments, I had success with Desoximetasone. I haven't used it in over a year because I hate paying for expensive medications and people's skin can become dependent on topical steroids and thin the skin... not good. But if it must be used, what else can you do? I've tried oral steroids (Prednisone and between how bloated it made me and the side effects I read about, like, psychotic breakdowns... I was like, no thank you).

As far as tips go, it sounds like you're on the right track. Reading ingredient labels is huge as is doing your research. The most aggravating thing about propylene glycol is that is goes by many names! Here's a list of alternate names. Definitely stay away from modified food starch... read more about that here. Many people with PG allergy will tell you to avoid propanediol, so I looked into it. I also got some doctors involved and you can read about that here. This is also a little list of other items to watch out for.

I hope this helps! Best of luck on your journey!

XOXO, Jennifer

Bubble Girl

nickel_allergy.png
Dang!!! It’s all I can say before I start a Loooong story how I found out about my eczema and allergies.

I can’t express enough the frustration I feel and the empathy for everyone that has to deal with it.

I knew I was allergic to nickel when I was 16 and got my ears pierced. It never healed properly and it blistered like a mofo. I didn’t think much of it except wear better jewelry. I didn’t realize (like many of us) how many things contain nickel. 😳

My allergies: Nickel, palladium chloride, shellfish, bees and last but not least, sulfa medications (this one is a doozy) I ended up with Steven Johnson Syndrome with this fella. 🙄

I was told by my allergist NOT to eat veggies out of a can (yep, true story) be careful with foods that contain nickel. YES! You heard it correctly FOOD! He also warned me about belt buckles, jeans snaps, keys, bucles on shoes. Good God, will I ever leave my house again? On the bright side I could just wear yoga pants and flip flops without a bra for the rest of my life 🤔

I’m a lady barber, I come in contact with A LOT of metal... 💩

I’m trying to figure out how to go about that. Lol it isn’t easy, that’s for sure.

Up until I read the thread, I didn’t realize about makeup. That’s insane!

I can tell you about tattoos though. I had a horrific reaction to my tattoos, yes, multiples. Be super careful and tell your artist about your nickel allergy. If he/she is a responsible artist, he/she will do a patch test on your skin with the colors you want to use.

thanks for the info everyone!
— Mia Hall

Hi, Mia!

Wow, being a hair dresser with nickel allergy can't be easy! Scissors, hair pins, combs/brushes... and probably other things I can't even think of... I definitely recommend a nickel testing kit (my fav is in my product guide) and purchasing from a hair accesory place with a good return policy. 

Isn't it crazy how much nickel creeps into food? People with nickel allergy should absolutely do their fair share of research on nickel in food.

You know, I feel like yoga pants, flip flops and no bra sounds like a good idea lol! Thank you sharing the nickel allergy / tattoo information. Finding a responsible artist you trust is definitely key.

Good luck in your journey, Mia!

XOXO,

Jennifer