Wow, your story reminds me so much of mine! Going from doctor to doctor, improving only to then slide further downhill, biopsies... it can be a really scary road. Once you find out what your allergens are, you can start avoiding them and your skin can start recovering. My doctors recommended oral Prednisone and it did make my skin get better, but I'd have to take it forever. Prednisone is a strong steroid with some pretty bad side effects, so I took a pass.
The extensive patch testing is a life-changer! I'm SO excited for you! Allergic contact dermatitis (aka eczema) is a lot less intimidating once you know what to avoid. Researching your allergens is definitely something I'd recommend. I would have never known why laminate counter tops were making my skin flare up if I hadn't done some digging.
I really feel for you when you talk about how this skin condition has affected you and your family... My allergic contact dermatitis also put a strain on my relationships at times... and it absolutely has made me less social because there are a lot of x-factors out in public and it can be REALLY overwhelming. I get it! Your health comes first, though, so please don't push yourself into going out and make sure you're taking some restorative "Me Time" on a regular basis. Stress is known to be a bad thing for our skin. And I love that we've been able to share our stories with each other.
Please hang in there! Once you have your specific allergy diagnosis, you can start putting one foot in front of the other in the journey of repairing your health. I'm rooting for you!