I recently found a dermatologist (3rd one) who actually allergy tested and biopsied my skin inflammation after two years of extreme, intractable pain. I was found to be allergic to adhesives, parabens (preservatives), adhesives and more. I am desperately trying to come up with a diet I can adhere to. I've already given up makeup and other beauty regimens for the usual thick, often unpleasant ointments or creams.

It is my hope that by adhering to diet and following some of your advice on physical contact with the culprits I will find some relief. A sad side note...I am a concert flutist and even though 90% of my instrument is solid silver! the keys and mouthpiece are not. I also was given a gift of a beautiful Martin guitar which I can also no longer play. I'm also an artist and painting may be a thing of the past as well, if I can't get this under control.

I also suffer from an unknown, as yet, autoimmune disorder that affects my balance due to cerebellar ataxia and ischemic optic neuropathy and cannot take steroids or biologics, nor am I able to use any of of NSAID due to gut inflammation.

My biggest issue besides pain is depression resulting from the inability to maintain my ADLs aka activities of daily living from brushing my hair to cooking to laundry.

I will gladly share good news when I have some and look forward to your posts. Thank you so much for taking time to do this!

Wow, I really feel for you. I know what it's like to have to give things up because of my allergies and losing something that you're passionate about such a music is NOT the easiest thing to deal with.... among everything else you're dealing with. I hope that you can figure out a way to keep music in your life! Not being able to take steroids can also be a blessing. A lot of people's bodies become dependent upon them and then it's really heard to ween yourself off of.

I hope that you can finds some ways to feel better soon and find some relief. Avoiding your allergens is definitely the way to go - especially with your other medical issues. To add your body reacting to allergies on top of  everything else... it's way too taxing on your body. Make sure to get some rest and have some "you" time. I definitely dealt with depression as a result of my allergies developing out of nowhere. "You" time is important! My best goes out to you!



To share your story, click here

To read more stories, click here